Privacy Policy

Last Updated: April 3, 2025

1. Introduction

Welcome to CRB1.org, a nonprofit organization dedicated to funding research for retinal disease, providing advice for thriving, and sharing research updates on CRB1 retinal dystrophy. We value your privacy and are committed to protecting any personal information you provide to us. This Privacy Policy explains how we collect, use, and safeguard your information when you visit our website.

2. Information We Collect

• Personal Information: When you donate, sign up for updates, or contact us, we may collect your name, email address, and payment details.
• Non-Personal Information: We may collect data such as your IP address, browser type, and site usage patterns to improve our website.
• Cookies and Tracking Technologies: We use cookies to enhance user experience and analyze website traffic.

3. How We Use Your Information

• To process donations and provide receipts.
• To send newsletters and research updates (you can opt out anytime).
• To respond to inquiries and provide user support.
• To improve our website functionality and user experience.

4. Information Sharing and Disclosure

• We do not sell or rent your personal information.
• We may share data with trusted third-party service providers who assist with website hosting, payment processing, and email distribution.
• We may disclose information if required by law or to protect our rights and safety.

5. Data Security

We implement industry-standard security measures to protect your personal data. However, no online transmission or storage is 100% secure, and we cannot guarantee absolute security.

6. Third-Party Links

Our website may contain links to external sites. We are not responsible for the privacy practices of those sites.

7. Medical Disclaimer

The information provided on CRB1.org is for educational and informational purposes only. It is not intended as medical advice. You should consult a qualified healthcare professional for medical concerns or decisions related to your health.

8. Audience and Geographic Limitations

Our website and newsletter are intended for U.S. audiences only. We do not actively target individuals in the European Union (EU) or the United Kingdom (UK) and do not intentionally process their personal data under the General Data Protection Regulation (GDPR) or the UK GDPR. If you are an EU or UK resident and have subscribed in error, please unsubscribe or contact us for removal.

9. Your Rights and Choices

• You may request access, correction, or deletion of your personal data by contacting us.
• You can opt out of receiving marketing emails by using the unsubscribe link in our emails.

10. Changes to This Privacy Policy

We may update this policy periodically. Any changes will be posted on this page with the updated effective date.

11. Contact Us

If you have any questions about this Privacy Policy, please contact us at info@crb1.org.