HOPE IS HERE
Finding a Cure for CRB1 Retinal Disease
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Watch a Message From Our President – Kristin Smedley
88,000
Individuals with CRB1 Retinal Disease Globally
$ 2,206,500
Dollars Raised
Together, We Can Impact the Lives of 88,000 CRB1 Patients
Picture this: A world where CRB1 retinal blindness is no longer a barrier to seeing the beauty around us. Thanks to your incredible support, we’ve completed the first major step by funding the pre-clinical research. Now, we’re eager to move forward and reach the crucial milestone of Proof of Concept. Your continued support is vital in propelling us from the lab to the clinic, making clinical trials a reality.
Empowering the Visually Impaired
Fearless, Fun, & Future Race Car Driver: Meet Everett (7, CRB1)
Picture this: a seven-year-old whirlwind of joy and fearlessness named Everett, whose vibrant spirit and unyielding courage are rewriting the narrative of life with CRB1 blindness. Join this journey into the extraordinary world of a young dreamer who, despite facing...
Explore Our CRB1 Resources
This work only got to this stage of development due to the support of @CureCRB1 @KristinSmedley @nyscf @UpliftingAth
Explore Helpful Resources
Curing Retinal Blindness Foundation has two main purposes: to fund a cure for CRB1 retinal disease and to support families and patients.
CRB1 Patient Registry
Help researchers and patients collaborate to find a quicker path to treatment.
CRB1 Research Collaborative
Meet the scientists and learn about their latest research breakthroughs.
Meet the Families
Read about inspirational stories of families and patients who are thriving.
Youth Blog: Clearly Seeing Blind
Hear directly from young adults in our community affected by CRB1 retinal disease.
CRB1 Frequently Asked Questions
Recently diagnosed? Check out answers to common questions.
About Our Foundation
Our Story
Our foundation started with a mom looking for answers and hope for her two boys diagnosed with CRB1 retinal disease.
CRB1 Research Collaborative
Meet the talented team that guides our board in evaluating and funding research for degenerative retinal diseases.
Board of Directors
Our dedicated board oversees the organization and ensures funding is spent wisely and effectively on projects that will move CRB1 to treatments and cures.
What is CRB1?
CRB1 retinal disease is an inherited and degenerative eye disease related to mutations in the CRB1 gene. Mutations can cause Retinitis Pigmentosa (RP), Lebers Congenital Amaurosis (LCA), Cone-Rod Dystrophy or general Retinal Dystrophy.
Our Story
Our foundation started with a mom looking for answers and hope for her two boys diagnosed with CRB1 retinal disease.
CRB1 Research Collaborative
Meet the talented team that guides our board in evaluating and funding research for degenerative retinal diseases.
Board of Directors
Our dedicated board oversees the organization and ensures funding is spent wisely and effectively on projects that will move CRB1 to treatments and cures.
What is CRB1?
CRB1 retinal disease is an inherited and degenerative eye disease related to mutations in the CRB1 gene. Mutations can cause Retinitis Pigmentosa (RP), Lebers Congenital Amaurosis (LCA), Cone-Rod Dystrophy or general Retinal Dystrophy.
Follow Our CRB1 Journey
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