Picture this: a seven-year-old whirlwind of joy and fearlessness named Everett, whose vibrant spirit and unyielding courage are rewriting the narrative of life with CRB1 blindness. Join this journey...
Foresight
CRB1 Science, Stories, and Support
Dr. Pete Quinn: A Beacon of Hope in the CRB1 Retinal Disease Journey
In the world of rare diseases, every step forward is monumental, every achievement a beacon of hope. One such beacon in our CRB1 retinal disease community is none other than Dr. Pete Quinn. A couple...
Opening Eyes and Rising Up For Blindness
Earlier this month CRBF was able to share our mission at Novartis Pharmaceutical in Boston. Novartis now owns the rights to Luxturna, a gene therapy that treats LCA-RPE65 blindness, in all countries...
Our “One Word” for 2020
You may have heard about the “One Word” movement. If not, basically, instead of making a New Year’s Resolution (or for many it’s in addition to the resolutions) you choose one word that you will...
Patients Now Have An Opportunity To Drive CRB1 Research and Advocacy
The latest development in moving research forward for CRB1 LCA/RP retinal disease involves a collaborative effort between the CRBF, Sanford Research, and best of all… patients! The CRB1 patient...