by CRB1Foundation | Jan 16, 2024 | Uncategorized
Picture this: a seven-year-old whirlwind of joy and fearlessness named Everett, whose vibrant spirit and unyielding courage are rewriting the narrative of life with CRB1 blindness. Join this journey into the extraordinary world of a young dreamer who, despite facing...
by CRB1Foundation | Oct 5, 2023 | Uncategorized
In the world of rare diseases, every step forward is monumental, every achievement a beacon of hope. One such beacon in our CRB1 retinal disease community is none other than Dr. Pete Quinn. A couple of years ago, Dr. Quinn received the prestigious Uplifting Athletes...
by CRB1Foundation | Feb 26, 2020 | Uncategorized
Opening Eyes and Rising Up For Blindness Earlier this month CRBF was able to share our mission at Novartis Pharmaceutical in Boston. Novartis now owns the rights to Luxturna, a gene therapy that treats LCA-RPE65 blindness, in all countries outside the United States....
by CRB1Foundation | Jan 14, 2020 | Uncategorized
Our “One Word” for 2020 You may have heard about the “One Word” movement. If not, basically, instead of making a New Year’s Resolution (or for many it’s in addition to the resolutions) you choose one word that you will focus on for the entire year that...
by CRB1Foundation | Sep 30, 2019 | Uncategorized
Patients Now Have An Opportunity To Drive CRB1 Research and Advocacy The latest development in moving research forward for CRB1 LCA/RP retinal disease involves a collaborative effort between the CRBF, Sanford Research, and best of all… patients! The CRB1 patient...
by CRB1Foundation | Jun 27, 2019 | Uncategorized
CRBF at BIO International Convention 2019! “Wow.” That’s pretty much the word first time attendees at BIO’s annual convention use, a lot. With over 17,000 people from 49 states and 67 countries in attendance, and expo booths bigger and more plentiful than you can...
