Picture this: a seven-year-old whirlwind of joy and fearlessness named Everett, whose vibrant spirit and unyielding courage are rewriting the narrative of life with CRB1 blindness. Join this journey...
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Dr. Pete Quinn: A Beacon of Hope in the CRB1 Retinal Disease Journey
In the world of rare diseases, every step forward is monumental, every achievement a beacon of hope. One such beacon in our CRB1 retinal disease community is none other than Dr. Pete Quinn. A couple...
Opening Eyes and Rising Up For Blindness
Opening Eyes and Rising Up For Blindness Earlier this month CRBF was able to share our mission at Novartis Pharmaceutical in Boston. Novartis now owns the rights to Luxturna, a gene therapy that...
Our “One Word” for 2020
Our "One Word" for 2020 You may have heard about the “One Word” movement. If not, basically, instead of making a New Year’s Resolution (or for many it’s in addition to the resolutions) you choose...
Patients Now Have An Opportunity To Drive CRB1 Research and Advocacy
Patients Now Have An Opportunity To Drive CRB1 Research and Advocacy The latest development in moving research forward for CRB1 LCA/RP retinal disease involves a collaborative effort between the...
CRBF at BIO International Convention 2019!
CRBF at BIO International Convention 2019! “Wow.” That’s pretty much the word first time attendees at BIO’s annual convention use, a lot. With over 17,000 people from 49 states and 67 countries in...
CRBF Work Is Featured During Rare Disease Week
CRBF Work Is Featured During Rare Disease Week. Welcome to Rare Disease Week! This is a special week where rare disease advocates around the world work toward raising awareness and tackling issues...